My Fibro

As a sufferer of Fibromyalgia, I hope that I can help you with your pain and how to deal with why you have chosen to deal with this condition in this life time, I understand your pain and how you feel……..

Please read this as I think it describes FMS very well.

If you were born with healthy genes, you may know me but you don’t understand me. I was not as lucky as you. I inherited the predisposition to chronic pain, fatigue and forgetfulness. I was diagnosed with fibromyalgia (FMS) after months, years or even decades of mysterious physical and emotional problems. Because you didn’t know how sick I was, you called me lazy, a malingerer, or simply ridiculous.

If you have the time to read on, I would like to help you understand how different I am from you. WHAT YOU SHOULD KNOW ABOUT FIBROMYALGIA

1. FMS is not the newest fad disease. In fact, it isn’t a disease at all, and it isn’t even new. In 1815, a surgeon at the University of Edenburgh, William Balfour, described fibromyalgia. Over the years, it has been known as chronic rheumatism, myalgia and fibrositis. Unlike diseases, syndromes do not have a known cause, but they do have a specific set of signs and symptoms which, unfortunately for the patient, take place together. Rheumatoid arthritis and lupus are also syndromes

2. The many physical and emotional problems associated with FMS are not psychological in origin. This is not an “all in your head” disorder. In 1987, the American Medical Association recognized FMS as a true physical illness and major cause of disability.

3. Syndromes strike life-long athletes as viciously as they do couch potatoes. They can be disabling and depressing, interfering with even the simplest activities of daily life.


1. My pain – My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue – I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can’t. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can’t help you with yard work today, it isn’t because I don’t want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

3. My forgetfulness – Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don’t have any short-term memory at all.

4. My clumsiness – If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities – I just can’t stand it! “It” could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the “aggravating everything disorder.” So don’t make me open the drapes or listen to your child scream. I really can’t stand it.

6. My intolerance – I can’t stand heat, either. Or humidity. If I am a man, I sweat…profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don’t feel compelled to point this shortcoming out to me. I know. And don’t be surprised if I shake uncontrollably when it’s cold. I don’t tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression – Yes, there are days when I would rather stay in bed or in the house or die. I have lost count of how many of Dr. Kevorkian’s patients suffered from FMS as well as other related illnesses. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress – My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I’m not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight – I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My need for therapy – If I get a massage every week, don’t envy me. My massage is not your massage. Consider how a massage would feel if that cramp you had in your leg last week was all over your body. Massaging it out was very painful, but it had to be done. My body is knot-filled. If I can stand the pain, regular massage can help, at least temporarily.

11. My good days – If you see me smiling and functioning normally, don’t assume I am well or that I have been cured. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

12. My uniqueness – Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

I hope that this helps you understand me, but if you still doubt my pain, your local bookstore, library and the internet have many good books and articles on fibromyalgia. Author’s note: This letter is based on communications with people throughout the world, males and females, who suffer from fibromyalgia.

It does not represent any one of the over 10,000,000 people with FMS, but it can help the healthy person understand how devastating this illness can be. Please do not take these people and their pain lightly. You wouldn’t want to spend even a day in their shoes…or their bodies.


Read more about my fibro at


    • Hi Michelle and Welcome, I am glad that this resonated with you so well, I hope as I bring you more info it helps with your healing. Much Love Aurora xx

  1. Just diagnosed 2 days ago after years of suffering, confusion and guilt of being “lazy & crazy.”

    Reading this…

    This IS me. And I’m in tears, because of the relief that I am no longer, “alone.”

    Thank you for sharing. I will be writing in my blog soon as well.


  2. Tric

    My beautiful Sister,

    Im so proud of you and all you have achieved. I know life has been a struggle for you. Im so pleased to see you sharing your vast knowledge of FMS so that others may feel a sense of relief that they are not alone. Keep up the great work. Love you x

  3. Stella Ware

    This is so true, all of the above, and how people treat you and find it hard to believe what is going on with us fibromites, we need to get the name and the symptoms of this evil syndorome that takes over and changes our entire lives out there to the general public, so that we dont have to suffer their snide looks or comments, Thank you for this blog,

    Love and Light
    Stella <3

    • Aurora

      Thank you Stella, it is so nice when this post helps people, so many people have directed friends and loved ones here so they can get a better understanding of how the person with Fibro feels.

      I appreciate your feedback and your friendship.

      Aurora xx

  4. JoAnn Livanos

    Bravo! When I was dx’ed 15 years ago I was told “yup, you have fibromyalgia, I have no clue what to do for you go home until you can walk again. Once you feel better you can go back to work.” Then of course all of us heard, “…it’s all in your head…” and I would say yes it is but I’m not crazy. Well I am but that’s besides the point. LOL. Good work. ((Hugs))

    • Aurora

      Thank you JoAnn,

      Your support means a lot. I am glad you found “My Fibro” helpful, it really helps to know others feel the same way doesn’t it.

      I also got the “yeah you have this thing called Fibromyalgia, not a lot is know about it” and that was that!


      Gentle Hugs
      Aurora xx

  5. Excellent post! I’d like to post a link to this on my blog:
    where I blog about chronic illness and chronic pain in general, including fibro.
    I’m always looking for ways to explain chronic pain and chronic illness, and your post provides some excellent “talking points.” Thanks!

  6. Pingback: My Forgetfulness | – Sharing Discussions on Fibromyalgia, Chronic Fatigue Syndrome and Other Related Health Issues

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