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Fighting My PCOS Poly Cystic Ovarian Part 2

Thank you to everyone for your wonderful support and feedback for Part 1. which can be found HERE

It is nice to know that I can reach out to others out there who are also dealing with this syndrome

I will continue where I left off, trying to conceive….

By this time I was frustrated at not being heard, I was ready to give up work and was now trying to fall pregnant. I was told by the doctors that I would never be able to have children because I was not ovulating and they didn’t know why, but being stubborn as I am I wasn’t going to take that for an answer, so I told him I would like to try and was put on all sorts of hormone replacements and hormone patches to try and induce ovulation, then I would haemorrhage and then go off them and have no period. I was still having numerous D&C’s to remove polyps and then they put me on Clomid to try and bring on ovulation and I had to drive an hour every morning to have blood tests to check and monitor my hormone levels – I was living in the country and I didn’t have this facility close by.

The Clomid made me so ill, I was having hot flushes, dizziness, vomiting and generally feeling very unwell. But hey, I was ovulating and producing 6-7 eggs a cycle.

The exhaustion coupled with the still undiagnosed fibromyalgia was only compounding the problem but I continued to do it for quite a few months. Then one day they called me into the office and told me that this was not going to work for me and that I needed to stop and they were refusing me any further treatment, I was not happy. So I went to the head of the hospital and said they are denying me the right to continue to try and  fall pregnant, to which he replied ..”we don’t have the resources to continue with someone who is a lost cause…”. I was shocked by this and was still not going to take NO for an answer. I left in tears, went home and pondered on it quite deeply and thought – I am going to have to do this on my own – so I contacted the head of the hospital again and told him he could not deny me blood tests and I wanted the tests to monitor my hormone levels, that I didn’t require any other treatment or any doctors to follow me up, all I want is the blood tests to which he agreed.

So now what do I do? I was basically told I was infertile, no one wanted to help me, no one had a diagnosis as to why I wasn’t able to conceive..now what?

That was when I decided I needed to go within and truly connect with my inner self and work out why was this happening, what was the cause of why I wasn’t getting pregnant. Was it fear? Was it hormonal? Was it my body?, So was it physical, emotional or spiritual?

I wanted to have a baby, so I knew it wasn’t emotional, I knew that spiritually it was time for me to have a child so I knew it wasn’t spiritual so then I realised it was a physical thing.  I had gained a fair amount of weight by this time, with the stress and the pain and the rampant hormonal changes and this was what they were blaming it all on – weight gain – not why I would be gaining weight, but purely that overweight=inability to conceive! Fobbing me off as just another overweight patient who couldn’t  fall pregnant and it was heartbreaking.

I wasn’t about to go on a strict diet and lose a few pounds so they could then put me back onto the cycle of hormone replacement and not actually work out what the underlying problem was, I just wasn’t going to do it.

I then went on a very long and costly journey of natural therapists and herbalists, Chinese medicine and iridologists, all trying to help but never quite getting it right. Everyone was always focusing on losing weight NOT why I was gaining weight in the first place…a hormonal imbalance! Why wasn’t anyone listening? I had read a bit about PCOS by this time and had almost self diagnosed myself but no one would listen enough to point me to a specialist to get a proper diagnosis.

So I went to the local library and read every book I could on trying to conceive naturally and I believe that when you look at these things you need to look at what resonates with you and take that information and leave the rest aside.  So I chose some aromatherapy books, some herbal books, some books on conception and on hormonal issues.  As I am a bit of a “flicker”, I would flick through and see what I made a connection with and take that on board and move on to a new book, I read and read book after book and I decided that what I needed to do was what was right for me.

I needed to sort out my hormone problem myself and I wasn’t about to go on a diet, I wasn’t about to go on anything too strict, but I totally changed everything I was doing. I gave up work so I wasn’t stressed any more, I eliminated all processed food out of my diet – I didn’t go crazy, I just made everything from scratch and went as organic and I could and that was mainly so I could detox my body.  I took some supplements which I don’t think really helped but didn’t hurt either, I did drink raspberry leaf tea and I think that helped to prepare  my uterus lining as I wasn’t ovulating and when I was I was haemorrhaging so I needed to calm it down and  I felt the raspberry leave tea helped that. The other thing I did was get rose geranium and chamomile oils and rubbed them on my stomach every day, it had a very calming effect. I was feeling very calm and was now losing weight, I started to meditate and exercised slowly as I still had undiagnosed fibromyalgia, so I had to learn what worked for me and what didn’t.

After a little while I ovulated! I knew when I had ovulated as I would get such intense pain – I think with PCOS you do get more pain as the egg follicle is a lot more dense and has quite a hard membrane to come out of so it is quite painful, so I had to continue on this path and now I was taking my temperature every morning waiting for it to spike and checking out my cervical mucus and this was all the knowledge from reading the books I had found, I was still going to have my blood monitored but not as often and I had to continue on this healthy path.

The first time that I decided to try it all out when my temperature had spiked, I was pregnant!

I went to the doctors to confirm and sure enough the so called impossible had happened, I was pregnant!  I went to the hospital knowing full well I was pregnant but needing the blood test anyway and they confirmed.  A few weeks later I got a congratulations letter from the head of the IVF department asking me if I would like to come and talk to other overweight women and how losing weight helped me to fall pregnant, when I replied that it was NOT losing weight but how I did it that mattered, I never heard back.

I went on to have a healthy pregnancy and a healthy baby girl.

I continued to live a healthy life style and conceived my second daughter 18 months later, again, unaided by drugs and unhelpful doctors.

But I still had undiagnosed PCOS which would flare up again putting me in and out of hospital for the next few years and lead to what could have been a deadly diagnosis…

To Be Continued………..

 

 

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Fighting My PCOS Poly Cystic Ovarian Syndrome Part 1

**Please note I am very graphic with my details in this blog**


When I was young about 15 I  suffered with heavy periods and mind numbing cramps when I had my period, so, as they do, I was put on the pill, that lasted all of about a month, I felt so ill I went off it and forgot about it, learning to deal with the pain instead, using hot packs and a Panadol.

As I got older, around 17 -19 I had horrible pains, which I would later learn through my own investigations was Mittelschmerz, lower abdominal pain that occurs in women at or around the time of an egg is released from the ovaries (ovulation). However I was told it was stress and to just relax and when that didn’t help and I actually passed out from the pain one day, I has in hospital having my appendix out!  That was the “diagnosis”

I continued to have pain and as I also had undiagnosed Fibromyalgia, I wasn’t sure half the time where the pain was coming from, I simply hurt all over and now I was developing new symptoms, hemorrhaging, massive clots and just feeling sick all the time, doctor after doctor would see me and send me away with new medications, which never worked and only made things worse, I was diagnosed with the same banner they put people in when they fit into the “too hard basket” depression! I had never had a depressed day in my life so I refused to believe it and also refused to take the anti-depressants they were trying to get me to take.

I went on about my life, got married and worked, usually with a lot of pain, but I just thought I was lazy and so I pushed through, I started to gain weight around 19, being told now that THIS was what the problem was, I needed to lose weight and all my problems would go away, I hasten to add I wasn’t even overweight, merely well-developed and curvaceous, however the weight did continue to pile on and then all of a sudden I missed several periods, I would go over a year with no period at all, “lose weight, you’ll be right” was all I was told, so I did, I lost weight and now my periods returned with a vengeance, back to the hemorrhaging, massive clots and just feeling sick all the time, now I was passing hard polyps and in and out of hospital having Dilation (or dilatation) and curettage (D&C) they would find large polyps and remove them then I would go home and nothing would change.

One day after D&C I was recovering in the hospital when I felt this horrible pain in my stomach, as I had put up with so much pain for so many years I just laid there, when the nurse came in I asked her for some pain relief, “you don’t look like someone in pain” she said, I rolled around in pain for a while then felt so sick I was on my way to the bathroom when I felt one of those horrible gushes and onto the floor was blood and a large polyp, when I pressed the button and the nurse came in she looked at me, looked at the floor and said “oh my you must have been in a lot of pain” duh!!

The doctor told me there wasn’t much to report and to go home, I did, and I continued on the cycle of heavy periods and no periods. Not game enough to continue seeing a doctor or telling anyone how bad I felt, I simply continued on.

After many years of this roller coaster of pain, hemorrhaging, anaemia, fatigue and sheer frustration, I wanted to get pregnant, but by now I was not even having a period, at all again!!. I was not coping at all well, especially when the doctors told me I would never be able to conceive due to the lack of ovulation.

To be continued…………

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