Fighting My PCOS Poly Cystic Ovarian Part 3

Please start with Part 1 and Part 2

I found it harder to continue to be healthy whilst pregnant with my second child, I craved so many bad things and it was a really rough pregnancy, I had a toddler, no family support and I suffered from bad morning sickness and basically felt sick through the whole pregnancy. The birth was normal and I gave birth to my second beautiful daughter.

So here I am now with two beautiful daughters, my eldest daughter was 22 months and of course my new born baby girl. but I was so sick, I still had a lot of pain and my postpartum bleeding just wouldn’t stop. I was finding it hard to breast feed, look after my youngest daughter and maintain a house being so tired and in so much pain, with no support at all.

I was admitted to hospital about a week after the birth and they ran so many tests and found nothing, now remember I am still un diagnosed with PCOS or Fibromyalgia. I was told there was no other diagnosis they could give me but postpartum depression.

The D word! Oh how I hate the D word, its like when theres nowhere for them to go that’s where they head.

Well that didn’t wash with me so I went to my Gynaecologist for my 6 week check up and I was still bleeding heavily, he ran more tests and now I had become anaemic and was told to go home, relax and take some iron tablets and the bleeding should settle down.

It didn’t. 3 months had passed now and I was still haemorrhaging, I was struggling so much, I was so fatigued by now, so they checked my iron levels again and they were still low, I was trying express how hard this was being in pain, bleeding non stop and trying to cope with every day life, so off I went on a merry go round of Doctors and Specialist to try and find out what was wrong with me.

This just went on and on and on, no one listening to why I was feeling so sick and in pain, no one wanting to do anything to stop this haemorrhaging which had now been constant for 6 months.

I went to my naturopath who told me I needed to see Dr Ian Buttfield a specialist physician who specialised in Chronic Fatigue.

He diagnosed me with CFS/ME and put me onto vitamin b12 injections, some valium to help with the pain and basically sent me on my way. with a diagnosis but still in pain, bleeding and unable to cope. Back then the pain wasn’t even relevant to a CFS/ME diagnosis, so I was still being seen as a malingerer and a lazy depressed mother who needed to buck up her ideas and well basically eat better.

I was now finding it even harder to lose the weight I had gained whilst pregnant, what with the un diagnosed PCOS and the pain and fatigue not to mention the copious amounts of blood gushing from my body for over 9 months now.

That seemed to be their answer to all of this though, lose weight and poof all your ails will be gone.

So through the pain, fatigue etc I tried ohhhh god knows I tried to lose weight but it would not happen. You would think having a 2 year old and a 9 month old to run after would help? I ran their kindergarten groups and went to every single Bananas in Pyjamas concert that came to town, every Wiggles concert, and anything else that would bring a smile to their faces.

But I was dying inside. I had so much pain and fatigue, I had made so many visits to my gynaecologist who admitted me for numerous dilatation and curettage (D&C) procedures, I was constantly in hospital but nothing would stop the bleeding. The next course of action was to try me on all sorts of hormone patches and pills and he made me feel like I was making a fuss about nothing, so did my husband at the time and my family, I guess if you have never haemorrhaged for 18 months non stop then you have no idea what its like? I asked my gynaecologist for a hysterectomy and he wasn’t happy about it, he didn’t think it would help, so off I went home again trying to get this bleeding to stop, I saw acupuncturists, Chinese herbalist, naturopaths but nothing would help. I had had enough!

After a heart breaking few weeks of deliberation I needed to make a decision. I wasn’t sure I wanted more children given my state of health and after all I went through to have children, to now think about removing my uterus, it was a hard decision to make but I had no choice so after 18 months of constant haemorrhaging, trying all sorts of hormone patches and hormonal pills, numerous curettes I said to the Gynaecologist HELP ME! I begged him please you HAVE to take this out, its the only way to stop it! PLEASE!

I had my partial hysterectomy in 1998, and when the specialist came to see me, he told me these words that still haunt me

“you are so lucky we got it out now, you had cystic hyperplasia – your uterus was pre cancerous”

and then these words – words I had been waiting to hear for 25 years

“you also have Poly Cystic Ovaries” “they were so large it was too dangerous to remove them they were adhered to your pelvic artery” “they were so big I took a photo for a book I am co author on, here is the photo”

There they were, my ovaries – the things that were slowly killing me, still inside me, still poly cystic and still causing me health issues, but as is the usual practise of the medical profession, they removed the symptoms and left the problem.

Great! so now i still have them and now what?

“theres not a lot we can do about them” see you in 6 weeks! bye!

The bleeding had stopped and I was feeling a lot better, but this was not the end of my struggle with PCOS, not by a long shot!

My ovaries would continue to cause massive issues including 3, 10cm growths.

To be continued..

Aurora xx

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