CFS/ME and every other unseen illness

I don’t usually like to post or even discuss any “woe is me” type of articles, but I watched this and some of the key statements in this video I related to.

I was diagnosed with Myalgic Encephalomyelitis in 1994 after the birth of my second child. When I finally got a diagnosis there was a sense of both relief and dread, because now I knew I wasn’t actually dying, even though it felt like it, but now I had a diagnosis of an illness that many people knew nothing about, or was referred to as the Yuppie Flu, or as my mother put it, “isn’t that the thing lazy people get”

Today I have been diagnosed with other illnesses as well and the puzzle of my health has been slowly fitting into place, there are some pieces missing but with my own intuition and Dr Google I, myself, alone, found, diagnosed and then went to the Doctor for confirmation and I will continue to do so until that last piece of the puzzle is found.

I have just come through the tail end of a very long and debilitating flare so I wanted to share my new diagnosis of Hyperadrenergic Postural Orthostatic Tachycardia Syndrome

More later

With Love
Aurora

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